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What to Look for in an MS Specialist

About 200 new cases of multiple sclerosis are diagnosed every week in the United States. If you’re one of them, it’s natural to feel confused or anxious about your next step. Most MS experts agree the road to take is the one leading to a neurologist who specializes in the treatment of multiple sclerosis.

“Your best bet is to choose a doctor who is a master of their trade and not just dabbling in the disease. You want a specialist who has treated thousands of MS patients, not just hundreds,” says Dr. Annette Okai, a neurologist who specializes in MS at Baylor University Medical Center in Dallas.

Plenty of experience and a wealth of knowledge matters, especially with MS, because it’s such a complex condition. MS is an autoimmune disease in which the body’s immune system overreacts and damages myelin, the covering that protects nerve fibers around the brain and spinal cord. This hyper-reaction causes problems in other areas of the body and can result in vision issues, imbalance, muscle weakness and spasticity, pain, brain fog, extreme fatigue and heat sensitivity, among others issues. “Picking up on the nuances of the disease is extremely important. What might help one MS sufferer won’t necessarily treat the symptom of another patient,” Okai says. “Specialists are more likely to tune into even the subtlest symptoms.”

A pattern of diverse symptoms is one reason why MS is often misdiagnosed from the get-go, and the error can swing either way, especially if the doctor is less experienced with the disease. “Just because you have some symptoms of MS, it doesn’t mean you have the disease,” says Dr. Teresa Kaldis, assistant professor of clinical medicine, Neurological Institute at Houston Methodist.

[See: 5 Rare Diseases You’ve Never Heard of (Until Now).]

A number of common conditions are frequently mistaken for multiple sclerosis, according to a study published online August 31, 2016, in the journal Neurology. And misdiagnosis can have serious consequences. For example, researchers found that 72 percent of the misdiagnosed patients took medication to treat MS when they didn’t have the disease, and 33 percent had remained misdiagnosed for a decade or longer.

“To avoid misdiagnosis and receiving the wrong treatment, it’s important to see someone who has the expertise to make an early diagnosis and be able to target symptoms with the correct treatment,” Okai says. A 2013 study reported in the American Journal Management Care found that the earlier the treatment, the better the prognosis for MS patients. “A specialist is more likely to get you the best treatment at the start of your disease symptoms,” Okai says.

Need more convincing? A June 2016 commentary in the Multiple Sclerosis Journal looked at the pros and cons of specialist care for patients with MS. The result? There was overwhelming support for the use of specialist care.

But what if you live in a small town where the nearest specialist or MS clinic is hours away from your home? “It’s worth it if you live in a rural area to make a trip at least once or twice a year to a major MS clinic where you can get a thorough check-up and your personal treatment plan,” Okai says. “From then on, your local neurologist will be able to stay in communication with your specialist.”

[See: 10 Lessons from Empowered Patients.]

Tips for choosing the right specialist:

— “Look for a neurologist who is fellowship-trained, specifically in MS. This means additional education over the course of one or two years,” Okai says.

— “If possible, find a specialist who is active in research or clinical trails, or at least is aware of the ones taking place,” Kaldis says. “New treatments are developing very quickly, and you want a specialist who is on top of the latest research.”

— “Ask yourself: ‘Do I feel confident this specialist really understands my particular symptoms, is listening to me and is offering individualized treatment, including complementary therapies?'” suggests Okai.

— “How easy is it to work with the office staff to get a message to the specialist?” Kaldis asks. “You want to be able to reach your doctor within a reasonable time.”

Ideally, you’ll be able to visit a large enough MS clinic where no matter what your symptom, there will be a doctor available who can treat it right there. “Look for a center that’s like one-stop shopping,” Kaldis suggests. “So if you’re experiencing emotional problems like depression, there’s a psychologist or psychiatrist in the clinic. Bladder issues? A urologist. Or if you’re having problems with walking or balance, you can see a physical therapist.”

[See: 10 Ways to Live Healthier and Save Money Doing It.]

There are approximately 70 MS clinics in the United States. You can find these clinics, as well as a list of neurologists who specialize in multiple sclerosis, in a directory that’s maintained by the Consortium of MS Centers.

You’ll also want to know if the specialist you’re interested in seeing is included in your insurance plan.

Don’t be discouraged if you can’t find your perfect fit right away. Like most relationships in life, it may be a process of trial and error before you meet your match.

More from U.S. News

5 Rare Diseases You’ve Never Heard Of (Until Now)

10 Lessons From Empowered Patients

10 Ways to Live Healthier and Save Money Doing It

What to Look for in an MS Specialist originally appeared on usnews.com

Don’t Settle for Student Loans to Pay for Online Education

Online college programs are becoming a more popular choice for prospective students, with one study finding that more than 6 million students enrolled in at least one online course in fall 2015. The popularity of these courses can be attributed in part to their flexibility with working adults' schedules, students' ability to progress more quickly through online programs and, oftentimes, cheaper tuition. [See 10 low-cost online bachelor's programs for out-of-state students.]Online degrees can be beneficial to many college students, but some studies have shown online learners complete their programs at lower rates than students at traditional brick-and-mortar campuses. Individuals with student loans but no degree comprise two-thirds of defaulted borrowers. Though these numbers are not encouraging, just like for traditional programs, there are ways to reduce how much you'll need to borrow for an online program to ensure you won't become one of these statistics. Don't just settle on borrowing student loans to cover the whole cost of your program and living expenses. Instead, start thinking about how to cut costs and cover your balance in different ways, such as the following. -- Grants and scholarships: Even though you are taking an online course, you can still apply and receive grants and scholarships. But your first step should be to complete the Free Application for Federal Student Aid, commonly referred to as the FAFSA, which will allow you to receive a Pell Grant if your expected family contribution is low enough. The EFC criteria and award amounts are adjusted annually, but the 2017-2018 academic year awards range from $606 to $5,920, which could significantly lower the amount you borrow annually. Your next step is to apply for scholarships. You can start by checking online scholarship search engines, such as the Salt Scholarship Search, College Board's BigFuture and Peterson's. 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Not all students enrolled in online programs are eligible, but students at some schools -- including, for example, SUNY Empire State College and Liberty University -- are. Work-study awards are not given upfront like scholarships and grants. In most cases, they are an offer to earn up to the awarded amount if you secure an eligible work-study job. While there is a misconception that all work-study jobs must be on campus, students can work for off-campus, nonprofit or public employers as long as the work is in the public's interest. You may be able to work for a for-profit employer if the job is relevant to your course of study. No matter who the outside employer is, it will need to have an established agreement with your college for you to receive work-study funds. Remember, to be eligible for federal financial aid, you must be enrolled and pursuing a degree or certificate. If you're not working toward a credential, Pell Grants and work-study won't be option, but you may still be able to take advantage of private scholarships -- just be sure to read the eligibility criteria carefully. [Explore what to know about financial aid in online programs.]-- Pay as you go: One of the great benefits to enrolling online is the flexible schedule, which can allow you to complete your college coursework around your responsibilities. But prospective students often overlook using their part- or full-time job earnings as an option for paying for college. Almost 80 percent of college students in 2015 worked at least part time while attending classes, according to the National Center for Education Statistics. By budgeting and thinking strategically about your college costs, you can likely reduce your dependence on student loans by paying a portion out of pocket. Many -- but not all -- online programs are less expensive than traditional programs and often have shorter payment periods. Six, eight or 10 weeks are common course durations. Because of the frequency of payments in an online setting, you may be well-placed to pay as you go and possibly avoid borrowing altogether. Attending college online and avoiding student loans may be challenging, but if you are willing to put in the effort, you can limit the amount you need to borrow. More from U.S. News Q&A: Understanding Student Loan Discharge Eligibility Student Loan Refinancing Isn't Right for All Borrowers
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