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Making Sense of Breast Cancer, Health Insurance and Time Off Work

A June 19, 2017 editorial in the New York Times opens with a quick summary of the current state of health care in America: “The problem with American health care is not the care. It’s the insurance.” Although advances are being made every day in the area of treating breast cancer and the five-year survival rate for localized cancers is now 99 percent (85 percent for cancers that have spread regionally and 26 percent for cancers that have metastasized to distance parts of the body), paying for these advanced treatments seems ever more difficult for some patients, especially given the current climate of uncertainty surrounding the health insurance and job markets.

And research suggests the financial toll of a breast cancer diagnosis may impact your health. A 2016 study conducted at the Fred Hutchinson Cancer Research Center in Seattle “found that the financial toxicity resulting from the high cost of cancer care is almost as deadly as cancer itself.”

[See: Breast Pain? Stop Worrying About Breast Cancer.]

Dr. Scott Ramsey, director of the Hutchinson Institute for Cancer Outcomes Research, said in a press release about the study that “it varies from cancer to cancer, but for those who are in a bankruptcy situation — and about 3 percent of cancer patients go bankrupt — the risk of dying is just very, very high.” In a related study published in 2013, Ramsey found that cancer patients, on average, were about 2.5 times more likely to declare bankruptcy as people without cancer. That’s because cancer treatment is expensive and exhausting; treatment for breast cancer could mean you’ll have to take a medical leave of absence from work, and for some that means a loss of income and the health insurance you’ll need to pay for the treatment.

A Canadian study published in 2005 found that “one year after diagnosis, 85 percent of breast cancer survivors who remained free of disease during the 3-year study period were absent from work for four weeks or more compared with 18 percent of healthy women.” The study noted that six months was the average time most of the women with breast cancer took off from work after receiving their diagnosis.

Molly MacDonald, founder of The Pink Fund, a nonprofit that provides 90 days’ worth of nonmedical cost-of-living expenses to breast cancer patients in active treatment, knows from experience just how precarious a patient’s finances can be during treatment for breast cancer. She was just about to start a new job in 2005, when a routine mammogram returned suspicious findings resulting in a breast cancer diagnosis. In an abundance of honesty, she let her would-be employer know, and she ended up not taking the job. “I didn’t want the employer to see me as a potential liability,” she says, but she was paying more than $1,300 per month for COBRA health insurance coverage. Within three months, she says she was potentially facing homelessness and bankruptcy and was worried about what would happen to her children. “I thought my kids are going to end up in this poverty cycle.”

She founded the Pink Fund to help patients like herself bridge the “huge chasm you have to cross over” between state and federal funds that are available to patients in the direst of financial circumstances and those who are “not making enough money to afford their care but are making too much to qualify” for financial assistance that would make a big difference. The aim of programs like the Pink Fund is to help patients have some time off and freedom from financial worries to help them focus on getting healthy again.

But getting time off work can be a real challenge for some patients, particularly hourly wage earners. People in those jobs only get paid if they show up, which can be exceedingly hard to do while receiving treatment. Side effects of chemotherapy and other breast cancer treatments can take a heavy toll on your energy levels, and when you feel as lousy as some of the medications make you feel, the very last thing you probably want to do is sit or stand somewhere all day trying to be pleasant to coworkers or customers. But to make ends meet, many patients must find a way to slog through it. For some patients, this means strategically scheduling treatments around a weekend or days off so the worst of the side effects hit on a day you’re not scheduled to be at work.

[See: 7 Innovations in Cancer Therapy.]

But your doctor or a social worker at the hospital may be able to help, both with scheduling treatments in a way that impacts your work life less or with financial help. Some hospitals have funds set up for low-income patients or those struggling to maintain a job or health insurance. The Susan G. Komen organization reports that “most hospitals and treatment centers have financial counselors. They can help you with the details of your insurance paperwork and give you an estimate of the cost of your treatment.” They may also be able to help devise a treatment payment plan, or if you’re eligible, waive the cost of some services. The Komen page linked above lists a range of financial resources that may be available to you, so check there for contact information.

Medicaid is a federal government program that’s intended to cover some patients who can’t get health insurance through their work or other means. Breastcancer.org recommends calling your local social services department to find out if you’re eligible. Your local public health department may also be a good resource for finding other programs that can help you pay for treatment.

The federal Affordable Care Act was intended to address the gaps in coverage out there for people who aren’t able to get health insurance through work, but that law is currently being repealed and replaced in Congress, and we simply don’t know yet what future health care legislation will look like. Meanwhile, private nonprofit organizations like the Pink Fund may be a way to address some of your financial needs while you’re in active treatment for breast cancer. The Susan G. Komen organization also sponsors programs that can help connect you with free or reduced rate care in your community. Similarly, the Avon Foundation for Women funds community-based safety net programs around the country. Through 2015, that organization has reportedly awarded more than 760 grants totaling upwards of $232 million to a network of more than 200 hospitals around the United States to help patients secure “access to high-quality, timely treatment.”

[See: What Not to Say to a Breast Cancer Patient.]

And before you’re even diagnosed, there are programs out there that can help you access free screening and diagnostic services. In 1990, Congress passed the Breast and Cervical Cancer Mortality Prevention Act, which directed the Centers for Disease Control and Prevention to create the National Breast & Cervical Cancer Early Detection Program. This program covers screening for patients in all 50 states, the District of Columbia, five U.S. territories and 11 American Indian/Alaska Native tribes. The CDC reports “the program helps low-income, uninsured and underinsured women gain access to breast and cervical cancer screening and diagnostic services,” including clinical breast examinations, mammograms and diagnostic testing for abnormal results. Eligibility baselines are set at 250 percent of the federal poverty level, and the CDC reports that 9.8 percent of U.S. women are eligible for breast cancer screening through the program.

Subsequent federal bills have helped fund access to breast and cervical cancer treatment through Medicaid for low-income patients in all 50 states and the District of Columbia. Although finding and navigating these resources can be challenging, there are programs out there that can help you pay for treatment.

If you’re having trouble making ends meet or are unsure how you’ll pay for treatment, be sure to speak with your doctor or another health care professional who can direct you to additional resources that may be available to help ease the burden so you can focus on healing.

More from U.S. News

Breast Pain? Stop Worrying About Cancer

7 Innovations in Cancer Therapy

What Not to Say to a Breast Cancer Patient

Making Sense of Breast Cancer, Health Insurance and Time Off Work originally appeared on usnews.com

Don’t Settle for Student Loans to Pay for Online Education

Online college programs are becoming a more popular choice for prospective students, with one study finding that more than 6 million students enrolled in at least one online course in fall 2015. The popularity of these courses can be attributed in part to their flexibility with working adults' schedules, students' ability to progress more quickly through online programs and, oftentimes, cheaper tuition. [See 10 low-cost online bachelor's programs for out-of-state students.]Online degrees can be beneficial to many college students, but some studies have shown online learners complete their programs at lower rates than students at traditional brick-and-mortar campuses. Individuals with student loans but no degree comprise two-thirds of defaulted borrowers. Though these numbers are not encouraging, just like for traditional programs, there are ways to reduce how much you'll need to borrow for an online program to ensure you won't become one of these statistics. Don't just settle on borrowing student loans to cover the whole cost of your program and living expenses. Instead, start thinking about how to cut costs and cover your balance in different ways, such as the following. -- Grants and scholarships: Even though you are taking an online course, you can still apply and receive grants and scholarships. But your first step should be to complete the Free Application for Federal Student Aid, commonly referred to as the FAFSA, which will allow you to receive a Pell Grant if your expected family contribution is low enough. The EFC criteria and award amounts are adjusted annually, but the 2017-2018 academic year awards range from $606 to $5,920, which could significantly lower the amount you borrow annually. Your next step is to apply for scholarships. You can start by checking online scholarship search engines, such as the Salt Scholarship Search, College Board's BigFuture and Peterson's. But don't forget to take advantage of local organizations and your school's financial aid office. Both may offer scholarships that you can't find with a national scholarship search. [Review these 10 sites to kick off your scholarship search.]For instance, organizations like the Elks Club, Knights of Columbus or the Rotary Club typically offer scholarships annually to local students. Just because you're going to school online doesn't mean you're ineligible. Visit your local library for scholarship listings, and ask around town. You might be surprised how many local organizations offer scholarships. While these scholarships typically aren't large, every little bit counts. Each dollar you receive in a scholarship is a dollar you don't have to borrow and pay interest on. -- Work-study: Another option for online students may be work-study awards. Not all students enrolled in online programs are eligible, but students at some schools -- including, for example, SUNY Empire State College and Liberty University -- are. Work-study awards are not given upfront like scholarships and grants. In most cases, they are an offer to earn up to the awarded amount if you secure an eligible work-study job. While there is a misconception that all work-study jobs must be on campus, students can work for off-campus, nonprofit or public employers as long as the work is in the public's interest. You may be able to work for a for-profit employer if the job is relevant to your course of study. No matter who the outside employer is, it will need to have an established agreement with your college for you to receive work-study funds. Remember, to be eligible for federal financial aid, you must be enrolled and pursuing a degree or certificate. If you're not working toward a credential, Pell Grants and work-study won't be option, but you may still be able to take advantage of private scholarships -- just be sure to read the eligibility criteria carefully. [Explore what to know about financial aid in online programs.]-- Pay as you go: One of the great benefits to enrolling online is the flexible schedule, which can allow you to complete your college coursework around your responsibilities. But prospective students often overlook using their part- or full-time job earnings as an option for paying for college. Almost 80 percent of college students in 2015 worked at least part time while attending classes, according to the National Center for Education Statistics. By budgeting and thinking strategically about your college costs, you can likely reduce your dependence on student loans by paying a portion out of pocket. Many -- but not all -- online programs are less expensive than traditional programs and often have shorter payment periods. Six, eight or 10 weeks are common course durations. Because of the frequency of payments in an online setting, you may be well-placed to pay as you go and possibly avoid borrowing altogether. Attending college online and avoiding student loans may be challenging, but if you are willing to put in the effort, you can limit the amount you need to borrow. More from U.S. News Q&A: Understanding Student Loan Discharge Eligibility Student Loan Refinancing Isn't Right for All Borrowers
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